Alex’s Wish – Help them conquer Duchenne
Alex is a 10 year old boy who was diagnosed with Duchenne Muscular Dystrophy in 2010. Duchenne is a very serious life-limiting muscle wasting disease that affects 1 in every 3,500 boys (it also affects girls but they only account for 1% of all diagnosed). It is the biggest genetic childhood killer condition and the most lethal and common form of Muscular Dystrophy.
Put simply, Duchenne leaves boys in wheelchairs by their early teens and completely paralysed by late teens. Boys typically die in their mid-twenties of heart or respiratory complications. There is no cure and no treatments available for Duchenne. Parents to Alex, Andy and Emma Hallam, set-up Alex’s Wish in 2012 and their mission is clear to fund and accelerate treatments and a cure for Duchenne Muscular Dystrophy. They actively seek out projects that could benefit this generation of children.
Within the next 10 years, they want to stop the devastating effects this condition has on those affected by Duchenne. They will achieve this by working with the leading scientists from around the world to bring potential viable new life-saving drugs to market. They work with other Duchenne charities to co-fund clinical trials and research projects and work on clinical trial capacity issues to make their mission a reality. With increased awareness and increased funding they will extend and improve lives of all those affected by Duchenne.
Since launch 4 years ago, Alex’s Wish has invested in 13 projects including early-stage research, drug development and clinical research infrastructure and are now looking in invest in gene therapy with Solid Biosciences. A cure would mean the world to boys with Duchenne.
Alex’s Wish is seeking out companies and individuals to help support their cause by taking part in their events, regular giving, choosing them as your Charity of the Year or by volunteering. To find out more visit www.alexswish.co.uk